Wednesday, October 21, 2009

48 Hours(give or take a couple)

For some reason I couldn't sleep this morning(wonder what that could be?).  I was wide awake a little before 6am.  That's highly uncharacteristic for me.  So, I decided to get out of the bed and get the day started, instead of lying there making my back hurt.  What is it that I decided to do?  Why Facebook and Blog of course.  Is there anything better at 6am? I didn't think so.

I just a few short hours we will finally be having this baby.  I'm so beyond ready.  I'm ready more than any words can express.  I know that I'm not prepared for everything that is going to transpire on Friday, but I am ready to not be pregnany anymore(for a little while at least).  I'm ready to feel like myself again, and not like an alien has taken over my body and is refusing to return it to me.

Yesterday I had my final OB appointment prior to the c-section.  I can not express how much I love the OB that I use, and his office staff.  They are absolutely wonderful.  I was also afforded the opportunity to tell our story to a med student.  Even though this is not the path that we would have chosen for ourselves, God chose this path for us, and we are fortunate to have had our lives forever changed because of Trisomy 18.  This med student will also be observing Jo's birth, and I would assume and hope some of my/her immediate care.  As you know, I think knowledge brings power, so I was excited when Dr. H asked if we would be willing to meet with her.  There's not a lot of information available about T18, other than the grim statistics.  Hopefully it will help her in her future practices to put real people with a diagnosis.  I also got my H1N1 vaccine yesterday.  Am I super cool or what?  I thought you would be jealous about that one.  I am now innoculated against all strains of the flu, both foreign and domestic.

After the OB appt I had to head over to our hospital to pre-op for the c-section.  Pre-op is not a big deal, it just takes absolutely forever.  Or mine did anyway.  I was fortunate enough to pre-op with the actual nurses that will be handling our case.  They wanted to get introductions out of the way before everything goes to crazy town on Friday.  I have to go back in the morning for some final lab work, but other than that I am FINISHED with MD appointments.  Hallelujah.  Even though the pregnancy itself(and not Johanna or her T18) have been completely normal and without complication, I feel like I have been at the OB every single week since March.  That's obviously a stretch, but I am ready for an MD break.  And they're probably ready for a break from me.

The rest of the day was pretty normal.  Work and home.  Some amazing friends of our brought us dinner last night.  They have a 3 1/2 year old little girl, so Clayton finally had play mate.  Neither one of them are used to being around other kids very often so it took them a long time to warm up to each other.  Once they decided that sharing was better than getting a whipping things went great.  They chased and played ball and laughed for a long time.  They left just before bed time and Clayton was so tired that he didn't fuss at all when Chad changed him into his PJ's(that may or may not glow in the dark) and laid him down.

Today is my last day at work until late December.  Today is our usual half day, so that makes it even quicker.  I really hope it goes well, and is mostly uneventful.  When you work for an MD, you can never tell what is going to happen.

Tomorrow, Chad and I are going to get a thing or two finished up around the house, and then head out to dinner tomorrow evening.  I love spending time with the hubs, and love it even more when someone else cooks and cleans up for me.

This is gonna be my last large post until Friday.  I have something simple planned for tomorrow.  I am taking the lappy with me, and of course the Crackberry on Friday. I hope to either post at some point or have my SIL do that for me at some point during the day.  I have tried to figure out how to Twitter, but for the life of me I just get confused.  Hopefully I can work on that a little more today and that might me the mode of transportation for Friday's events.  If I can out smart Twitter, then I will put the link on the sidebar.  For my real life peeps, I am going to try to Facebook some.  Don't hold me to anything, but I am going to try.  Ya'll have been such an encouragement to me along this journey, that I want to make sure you are included in the big day. 

I think that's it for now.  And it's getting close to time to start getting ready for work.  I hope your day is great.  Thanks for taking this journey with us.  I hope you've learned, loved, laughed, and cryed along with me.  Trisomy 18 has been the biggest challenge of my 27 years.  But I can now say with 100% confidence that I am thankful that it is forever a part of my life.  I wouldn't take it away or change it, for that would be changing my daughter and what God created her to be. 

I will praise thee; for I am fearfully and wonderfully made: marvellous are thy works; and that my soul knoweth right well. Psalm 139:14


Carrie said...

Hi, Nikki - I have been following your blog for several months now and have not ever commented before. So sorry for that! Didn't mean to always read and never say hello! Anyway, I just wanted to let you know that I am praying for you and your family and your precious Johanna. Will be looking forward to updates on Friday. I think you are so amazing for how you are handling all of this with God's grace and that sweet baby is very blessed to have you as her Mommy!

Emma and Company said...

I have been following you for months now...I really don't know what to say right now. I am praying so hard for comfort for you and Chad and Clayton on Friday and I am joyful for you to meet precious Jo. I am so nervous for you as well to hear how things turn out....will Jo spend time on earth with you or will she go quickly Home to our Lord? Either way, I know you will have peace and I just want you to know I will be praying and thinking about you all day long on Friday.

Pam said...

Hey Girl,

I'm just amazed and in awe of how the Lord is so at work. What a blessing it has been to follow you along on your journey and of course will continue to follow. God is Good and He will see you through. I will check the blog often the next couple of days and of course be praying like crazy.
If I can do anything for you, just say the word. Much prayer, love and hugs sent your way!!!!!!!!
In Christ Alone,

Lucy and Ethel said...

Lots of hugs and prayers for an uneventful time before the big moment on Friday... and for the big moment, and afterward.

It has been a pleasure to follow you along in this journey, if briefly. You seem to have an amazing grasp on the magnitude of this assignment and the awesomeness of your being chosen.

Can't wait to see pictures of your little gal!!!


Tamara said...

Hi, I have been following your blog for a few months now as well, and I am praying for you, (without even knowing you). Isn't it awesome how God can connect his children that way. We're in the same family, and over the months reading, I have wondered how I would react in your situation, and somehow think I wouldn't do as well as you have, but I think we can't know our inner strength, and God's strength until we go through something. You have definitely inspired me with your faith! I'll be thinking of you these next couple of days.

christina said...

281.217.9401 and i'm going to facebook stalk you now. i love you. i'm with you. you are on my heart! I can't wait to continue walking with you, no matter the journey! I am HERE!

Jamie Lynn said...

I was just thinking of it being two days... But less than 48 hours makes it seem closer:)

I love ya!!
See ya Friday!

Beth.. One Blessed Nana said...

Nikkie - what a beautiful sentiment for your precious little Johanna. You are a strong young woman and I just know that God is growing you through all of this. He has mighty things for you!

Praying always.

Simply Donna...... said...

I am always amazed at your strength. Your faith has touched me so. I pray that Friday will be a day of many blessings.

God certainly has chosen the right family to be blessed with Johanna. I can't think of anyone I know that could handle this the way that you guys have.

(tears, tears) I don't mean to cry, but you are so special to me. Even though I will not personally be there Friday - I will be there in spirit and thoughts. If you need anything and I mean anything, you have someone call me. I am already nervous, excited and anxious, I can't imagine what I am going to be like Friday (hehehe).

Hugs and Love to you my special friend. Your in my prayers!

Leigh-Anne said...

You don't know me but I will be thinking about you on Friday. I have lost two babies full term by c-cection. I also knew that they wouldn't make it and would be going to Heaven. Just know you are loved and thought about. Johanna has a beautiful mom, dad & brother that love her so very much..

Jessica said...

First time commenting. I'm a blog stalker ;) I will be praying the next two days, especially for Friday delivery.
Blessings and Peace.

Jill Smith said...

Hey Nikki,

We wish you the best in the coming days. We have a 5 month old little girl with T-18. She has rocked our world in the best way possible. We will pray for you and your family. We know how the roller coaster of emotions is during the wait, especially in last few days. We wish you peace and that you get to look into the eyes of your little Jo. If you have any questions or need someone who understands, please let us know.

Dave and Jlll-

Kelly said...

Much prayer and many tears went up for your family in our prayer meeting tonight at church. Please know that you are dearly loved and thought about. I would love to follow you on twitter to get updates on Friday. I didn't see your username posted on your blog, so maybe you could email it to me, or follow me or something. :) My twitter username is kjmfrank and my email is:

{{hugs & prayers}}

Myra said...

I was going to tell you the exact thing that my sis did.

I would love to have updates on Friday, so I can pray more specifically.

My twitter handle is @happyhwife and my e-mail is